Guess where we’ve been……..?? Yes we’ve made it to Universal in Orlando about 3 hours away from Jacksonville where we’re staying. The hospital sorted the most amazing ‘once in a lifetime’ tickets for Jacob to experience Universal Studios and Islands of Adventure. Jacob and Oscar had an amazing time (so did mummy and daddy!) – […]
How frightening must this be? Your head in a custom made ‘immobilizer mask’ pinned to a plinth and a mouth guard in so you CANNOT move – Jacob was very worried about not being able to move his head or body but he was brilliant. A lot of thought had gone into his playlist to be […]
All organised, Jacob’s mask has been made and everything else is ready to start treatment. It was very scary for Jacob, again the ‘unknown’ – to put Jacob’s mind at rest they have taken him around the treatment rooms so he can familiarise himself with his surroundings.
Our amazing brave boy Jacob is having his 1st day of treatment so time for a trim before it all starts! Jacob might lose his hair at entry points and his scalp will become incredibly sensitive so a cut now is the best option – not the first time Jacob has lost his hair on this journey but […]
