Jacob is back in A&E with hydrocephalus (fluid on the brain) caused by the brain tumour.

Jacob is back in A&E with hydrocephalus (fluid on the brain) caused by the brain tumour.
Jacob out on his bike – well done Jacob!
Move over Jacob I’m coming in for a cuddle! xx
Aud’s Chime is such an important part of treatment, we were/are unaware that there is such a thing in England as we havent come across it in any hospital. This chime symbolises the ‘End Of Treatment’ for each and every patient that is receiving Proton treatment at this particular hospital. We saw all sorts of […]
Jacobs diet is SO important. Tonight we’ve done amazing roasted vegetables (squash, sweet potato, beetroot and onions) and home grown garlic served with organic salmon and kale for dinner. So easy to make – and SO good for you – Delicious!
After Jacobs Proton treatment in America we were told to expect hair loss where the beams had entered Jacobs brain. We can’t believe how perfect the circles are! It’s not the first time Jacob has lost his hair, but its definitely the most interesting!
Wow – where do we start………we are so proud of you Jacob, our beautiful boy. Jacob and Oscar, you both are truly inspirational to us. Jacob, you have been absolutely amazing and you continue to inspire us daily. The way you are coping, your positivity, your approach to life is a true testament to you […]
Well what a journey we’ve had so far! We’ve been in America now for nearly 7 weeks. The support you have all given emotionally and financially has overwhelmed us, so from the bottom of our hearts “THANK YOU” – and we’d like to shout that from the roof tops too! OVER TO JACOB: My Mum […]
Guess where we’ve been……..?? Yes we’ve made it to Universal in Orlando about 3 hours away from Jacksonville where we’re staying. The hospital sorted the most amazing ‘once in a lifetime’ tickets for Jacob to experience Universal Studios and Islands of Adventure. Jacob and Oscar had an amazing time (so did mummy and daddy!) – […]
Seven treatments in and Jacob has been amazing. Jacob was very worried about not being able to move his head or body but he was brilliant. A lot of thought had gone into his playlist to be streamed into the treatment room to ensure that he feels comfortable. The staff have been amazing and so positive. […]