Proton Mask and Treatment

Jacobs first treatment

How frightening must this be?  Your head in a custom made ‘immobilizer mask’ pinned to a plinth and a mouth guard in so you CANNOT move – Jacob was very worried about not being able to move his head or body but he was brilliant.  A lot of thought had gone into his playlist to be […]

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We've arrived.

Jacob arrives at the UF Proton Therapy Institute

All organised, Jacob’s mask has been made and everything else is ready to start treatment.  It was very scary for Jacob, again the ‘unknown’ – to put Jacob’s mind at rest they have taken him around the treatment rooms so he can familiarise himself with his surroundings.  

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Jacob Healing

The healing process continues

Jacobs wound on his head was healing well and his hair was slowly beginning to grow back.  The tests and scans continued, along with physiotherapy.  It’s just amazing to see Jacob come through his operation.  Aimee’s strict gluten free diet, wheat free, dairy free and sugar free diet has been embraced by Jacob.  Jacob has also been […]

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Jacob's Post Op

Jacob sits up on the road to recovery

The operation at BCH was done and Jacob was soon sitting up and moving around whilst still attached to all his wires and tubes.  We just wanted to take him home as soon as we could and look after him. Jacob was able to come home in October although there was a strict monitoring process with trips […]

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Jacob

Jacob post operation

The surgery over, the biopsy was sent off for more investigation, we would now have to wait a week to find out what tumour Jacob has. The rest of the tumour is too dangerous to remove due to the location in Jacob’s brain. (September 2014)

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Jacob

Jacob endured a 10 hour operation on his 10th Birthday

It was our little boys 10th birthday, he was taken into surgery within 10 minutes of being born 10 years earlier, it was a devastating and we feared the worst, he was about to go in for a 10 hour operation. We went with Jacob through to the anaesthetic room, we tried to stay positive and strong […]

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Jacob

Jacob – enjoying life with his little brother Oscar

Jacob was born in the September 2004. Jacob is a truly amazing boy, he is incredibly sociable, caring, he has a complete endearing character.  Jacob is a complete pleasure to be around and lightens up every room he enters. Jacob loves spending time with family, friends and really enjoyed sport.  To name just a few…….rugby, football, swimming, […]

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